Welcome to the ChILDREN Website!

Patients and Families

Physicians and Health Care Professionals

 

 

The Childhood Liver Disease Research and Education Network has recently been funded and combines the Biliary Atresia Research Consortium (BARC) and the Cholestatic Liver Disease Consortium (CLiC), as well as new studies on cystic fibrosis liver disease. This consolidation seeks to facilitate our ability to discover new diagnostics, etiologic, and treatment options for children with liver disease, and those who undergo liver transplantation, and to train the next generation of investigators in rare pediatric liver diseases. These diseases are:

 

Alpha-1-antitrypsin (a-1AT) deficiency

Alagille syndrome (AGS)

Biliary Atresia

Progressive familial intrahepatic cholestasis (PFIC)

Bile acid synthesis and metabolism defects

Mitochondrial hepatopathies

Cystic Fibrosis Liver Disease

 

The purpose of this consortium is to provide a way for patients to join with doctors and researchers by participating in research studies. The greater the collaboration between doctors and patients and their families, the more we can learn about these diseases. This important first step is necessary if we are to find new and better treatments. ChiLDREN can help you:

Obtain helpful information about these diseases

Stay up to date with new developments

Become aware of clinical research and clinical trial opportunities

Connect with patient support groups

 

 

Please click on the following links to gain more information about these efforts, or contact Ms. Joan Hines at the ChiLDREN Administrative Core.

 

Biliary Atresia Research Consortium: Click Here

Cholestatic Liver Disease Consortium: Click Here

Cystic Fibrosis Liver Disease: Click Here

ChiLDREN Administrative Core

Joan M. Hines, MPH
Research Administrator,
Childhood Liver Disease Research and Education Network (ChiLDREN)
The Children's Hospital
Section of PediatricGastroenterology/Hepatology/Nutrition
13123 East 16th Avenue, B290
Aurora, Colorado 80045
720-777-2598 phone
720-777-7325 fax

hines.joan@tchden.org
www.thechildrenshospital.org

 

 

 


 

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